NBDF Daily, Sat. Aug. 19, 2023Cover

NBDF Daily Bannerfriday datelineYouTube with AnalyticsDividing Rule 2-1691703030-1692376629Status, Stumbling Blocks of Gene Therapy

By Deb Burrows, BS, MA
Attendees at the 2023 BDC gathered together Friday afternoon to hear the latest news in gene therapy during Gene Therapy: Real-World Experiences and Current Challenges. Panel speakers included Glenn Pierce, MD, PhD, vice president, medical, World Federation of Hemophilia; Steven W. Pipe, MD, professor of pediatrics and pathology, University of Michigan, and pediatric medical director, hemophilia and coagulation disorders program; Ulrike M. Reiss, MD, director, hemophilia treatment center, St. Jude Children's Research Hospital; Radoslaw Kaczmarek, PhD, MSc, assistant research professor of pediatrics, Indiana University School of Medicine; Kollet Koulianos, MBA, chief executive officer, P3 Healthcare Benefit Consulting; andMichael Wang, MD, director, hemophilia and thrombosis center, and professor of pediatrics-Hem/Onc/BMT, University of Colorado School of Medicine.
Story continues here...Dividing Rule 2-1691703030Building Health Equity, Diversity and Inclusion in the Bleeding Disorders Community

By Sandy Smith
The table is open and the bleeding disorders community, led by the National Bleeding Disorders Foundation, is welcome to pull up a seat and join.
At the Friday session, Making Change for Health Equity, Diversity and Inclusion, attendees heard how sponsors, chapters and NBDF are at work on ensuring HEDI.
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